Hello bloggers! I've finally given in so that I will write a new blog post. It has been a little while, hu?
Let's see, the last time you heard from me, I was just starting my treatments. I have now had two doses of the Avastin and am about to go in today for my 7th shot of Interferon. Last Monday they upped the Interferon from 300 millions to 600. Today I believe it will be going up to 900. Unless the doctor really feels like it's necessary, I will not be going up to the highest dosage, which is 1200. I've been doing pretty well on the drugs so far, so perhaps I might go up to 1200. I haven't noticed differences with the drugs really except that I am more tired and the last few days I've been extremely nauseated. I have pills for the nausea, but I feel they don't do much unless I take two at a time, and even then. Another thing is I've really lost my appetite. I mean, I haven't had much of one for a while, but it's practically not even there anymore. How can you have an appetite when the thought of food makes you more nauseated than you already are? Ugh, not fun.
I've definitely been able to know the infusion people well over the last few weeks. I know the system, I know the rooms, and I know quite a few people. My mom was even able to take me the other day and so I showed her around the SCCA. I was having issues with a certain nurse (i believe I mentioned her before) and how she bugged me and wasn't nice with the needles but my dad mentioned it the other day and we were able to get a new nurse. Wednesday I go in again for my next IV so we'll see how the new nurse does with finding my veins... No matter what I do, it's still near impossible to find them and I end up like a pincushion.
So, just two more IVs, and a few more weeks of shots and then I'll go back in for CT scans. That'll happen the 14th of December and I'll know about if/when my surgery is on the 15th. If it looks good enough to operate, expect that right after new years. Hopefully it will be a calm Christmas. Hmmmm hopefully I'll have an appetite for Thanksgiving.....
Thanks for all your thoughts and prayers, it is EXTREMELY difficult sitting in this house day after day and having no social life. Sometimes it's hard to get out of bed because I have to open my eyes and see the same four walls again. But, only a little longer and then this shall pass. Thanks!
-Malfoy (my nickname, penned today in honor of HP: Deathly Hallows Part 1 coming out this week!)
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4 comments:
Mallroy
this is me: missing you. Wishing I could come chill with you and read or listen to the best musique or laugh about reeeeally random stuff. Like manna. Or lava lamps. That would be very random. Anyway, I'm also extremely happy that HP 7.1 is coming out this very week! I'm hoping you'll get to see it STAT? on the niner-niner?! My fav. character is hermoine and I'm hoping she's as awesome in this next installation to the saga as she's been in the previous films.
You are truly a ROCKSTAR for braving the interferon nastiness. That stuff can rock you pretty hard, in a flu-esque way. Thank you for the update via bloggy blog and know that I been thinkin' bout you, girrrrl!
bright fluorescent vests of awesomeness and a most beloved cow suit,
Manders
Sorry your apetite stinks. This is a lame time of year for that to happen. It is good that you are halfway through your IV's though. I am so proud of you for staying so positive through all of this. I was sad that I didn't get to go with Kelson and Jenny to see you the other day, but I'm glad you finally have a bed. Love you!
Glad to hear it's going pretty well. Keep up the good work.
Have been thinking of and praying for you daily. I put your name on the Temple Prayer Roll tonight, too. Keep thinking positive thoughts!
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